MS and SLV

My name is Sandi Selvi, I have Multiple Sclerosis. I do not know how I got this disease, but I intend on finding out. I want to know what I did or didn’t do, that caused me to develop MS. I want to know because I do not want my children to follow in my footsteps and there is an indication of genetic susceptibility.

At my High School, San Lorenzo Valley High in Felton California (we didn’t even have a total of 150 people in our graduating class in 1978), I had been contacted personally by 7 people who had also been diagnosed with MS, from the classes of 1975 through 1979. I sent out a mass e-mail to my class and the classes of 1976 and 1977 looking for more people like me. In doing so, I found quite a few more. The total is up to 13 people, in less than 700. The average in the United States is 11 in 10,000. These numbers astounded me.

I contacted the National Multiple Sclerosis Society and they sent me a paper on clusters, which led me to the federal Agency for Toxic Substances and Disease Registry

From there I went to the federal Agency for Toxic Substances and Disease Registry where I petitioned for a Public Health Assessment.

I also talked to Dr. Steven Houser from UCSF, one of the leading neurologist in the United States, and told him of the frequency of MS at San Lorenzo Valley High and he also seemed concerned, and would also like to see a study done.

So, if you went to SLV and have MS or an autoimmune disease, or know someone who does, please let me know. Hopefully we can get to the bottom of this disease, and answer some questions the doctors have not been able to do, so far.